AOCN

1. Right to education (RTE)

Creation of an appellate cell in the AOCN where any case who is facing issues in schooling can be referred by any Pediatrician/Pediatric Neurologist/ Parent.
Draft a letter with a standard format on the AOCN letterhead, for sending to the concerned school when required.
In case of non resolution, the District Education officer etc need to be identified by the Advocacy group of AOCN who can be requested to take up the case.
Highlight through media and create public awareness about the right to education act.
The information on the RTE to be put up on the AOCN website, overand above the link to the SOLACE document.

2. Epilepsy Awareness

Epilepsy awareness to be created among
School teachers/ staff and parents in parent teacher meetings
School children from classes 8 – 11
School children from classes 8 – 11
Training modules for both these categories in the form of a PPT will be created and training will be carried out by young Pediatricians and Pediatric Neurologists on a volunteer basis.

3. Inclusion of epilepsy as a disability in the Disabilities Act 2016

To work towards inclusion of epilepsy as a disability in the disabilities act of 2016.

4. Insurance policies for children with epilepsy:

Current insurance policies have epilepsy as a permanent disability, making it difficult for children with epilepsy to take medical insurance policies.
The current status of insurance policies to reviewed and a roadmap prepared , for special Mediclaim policies for children with epilepsy.

5. Making newer drugs available

The committee will work on making available the following drugs : CBD/Vigabatrin/Stiripentol/Fenfluramine/ Rufinamide

6. Preparation of a list of support groups of various neurological disorders

7. Working with parent advocacy groups & support groups

State wise trial with Dream India Network and with trial in Karnataka as the initial program.

8. Dissemination of the AOCN SOLACE document which is available from the AOCN website.

Association Of Child Neurology, India